WayCool Sites

Little League
Girl's Basketball!
LIBERTY!
In Memorium
Down Syndrome
Inclusion Issues
Hearing Loss
Stained Glass
Photo Gallery
Art Gallery
Air-Cooled VW's
Bozodom
Meryl
Jeremy
Sarah
Roger
Kathy
AVM



Virtual Snacks!

Hot Dog!

Other Cool Sites


Family Resource Network


Come and visit EARLYLIGHT!




Meryl's Page
Meryl and Doug

Meryl is now a SENIOR!        Summertime!
Welcome to Meryl's Page!

Meryl!

Meryl is now 22! ....and I am not at all sure that she has decided what direction her life and education should be taking.......

Meryl has now decided that she can include a bit more of her personal history on this page, in the hopes that it can serve to help out others that are searching for links.

In the summer of 1995, just before she started 8th grade, Meryl suffered a Grand Mal seizure on the last day of Summer School. Aside from being a major embarrassment (falling down in front of - and on - your friends is not considered too cool) Meryl ended up in the hospital having one test after another done. She fell asleep during the CAT scan, dozed a bit during the MRI (magnetic resonance imaging) and really truly hated the angiogram. The results? The doctors found that Meryl had a congenital condition known as a cerebral arteriovenous malformation in her left temporal lobe. This was a cluster of veins and arteries that had bled - probably several times before (on the scans you could see the calcium deposits from prior episodes - even though she had been asymptomatic).

Meryl was just 12 years old, but discussed the options with the Neurologist in a close-to-adult manner. The two questions uppermost on her mind - how much of her long blonde hair would they shave off - - - and could she still have pizza for dinner if the surgery was in the morning! The need for the surgery was apparent - without it, or some other intervention , she would probably bleed again - and the blood would pool in the speech centers of the brain. Even anti-seizure meds would not stop that process - just keep the seizures from alerting us to the fact that it was bleeding...

Meryl pulled through the surgery VERY well. The surgeon had only shaved the front part of her hair - up to the top of her head. We had French-braided the rest - so at least it all held together. In retrospect, maybe that part wasn't too good of an idea - because we couldn't wash her hair for many days after surgery, and all the long hair that had been shaved was braided in with the rest! After three days in the hospital, Meryl came home. Eyes swollen, a bit of a headache, but all-in-all not too bad.

Meryl spent the following year growing her hair back, and taking doses of dilantin to stave off any further seizures. A whole year, and she only overdosed on dilantin once! She slowed down a little on physical activities - but kept up with the piano and singing. The rest of her hair got cut shorter - something she had been wanting to do for years! Her Dad was in the Ukraine during most of the excitement - we told him that on his return, we were having NO flack about getting her hair cut short!

The High School Sophomore!

Meryl's favorite T.V shows are I Love Lucy, Happy Days, and Rhoda. Her favorite movies are Twister, Sgt.Bilko, Newsies, and TITANIC! Check back for graphics from the movie Titanic - as soon as Meryl gets it together to share them...

Hot Dog!


Links on Arteriovenous Malformation and Seizure Disorders:

Debbie's Page - NEW! 
Arterio Venous Malformations of the Brain and Spine 
Brain Arteriovenous Malformations (AVMs) 
NEUROSURGERY Table of Contents 11-95 
1997 Brain Aneurysm and Arteriovenous Malformation Center at MGH/Harvard ~ Cerebrovascular Surgery 
Aneurysm and AVM Support 
AVM Discussion 
Treatment of ARTERIOVENOUS MALFORMATIONS 
Brain Vascular Malformation (AVM/Cavernous Angioma) Index 
Seizure 
Chapter 12: Seizures 

Meryl's Favorite Links on the WWW:
Princess Bride Links: Music Links: Electronic Postcards:
Other Sites of Interest:

Looking for more? Try out our search engine!


Search 
 
Explore 
SmartLinks from LookSmart (sm)



WayCool Sites!